SB1950 EnrolledLRB104 10803 BDA 20884 b

1    AN ACT concerning health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 1. Short title; references to Act.
5    (a) Short Title. This Act may be cited as the End-of-Life
6Options for Terminally Ill Patients Act.
7    (b) References to Act. This Act may be referred to as Deb's
8Law.
 
9    Section 5. Findings and intent.
10    (a) The General Assembly finds that:
11        (1) Medical aid in dying is part of general medical
12    care and complements other end-of-life options, such as
13    comfort care, pain control, palliative care, and hospice
14    care, for individuals to have an end-of-life experience
15    aligned with their beliefs and values.
16        (2) The availability of medical aid in dying provides
17    an additional end-of-life care option for terminally ill
18    individuals who seek to retain their autonomy and some
19    level of control over the progression of the disease as
20    they near the end of life or to ease unnecessary pain and
21    suffering.
22        (3) Illinoisans facing a terminal diagnosis have been
23    at the forefront of statewide efforts to provide the full

 

 

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1    range of end-of-life care options available in 10 states
2    and the District of Columbia, to qualified mentally
3    capable terminal adults residing in Illinois through the
4    addition of medical aid-in-dying care as an end-of-life
5    option in their home state. Advocates include:
6            (A) Deb Robertson, a lifelong Illinois resident
7        who has been living with a rare form of her terminal
8        illness, who wants to live but knows that she is going
9        to die, and who has been actively engaged in advocacy
10        to change Illinois law because she doesn't want to
11        move to another state in order to access the
12        end-of-life medical care that would bring her comfort
13        and reduce her fear related to the pain of dying.
14            (B) Andrew Flack, who could not move back to
15        Illinois to be with his family after his terminal
16        diagnosis and instead had to live hundreds of miles
17        away from his family, in a state that offered medical
18        aid-in-dying care, in order to have a painless death
19        surrounded by his loved ones.
20            (C) Miguel Carrasquillo, who despite enduring
21        excruciatingly painful treatments to cure his cancer,
22        which spread to his liver, stomach, testicles, and
23        other organs, continued to advocate for a change in
24        the law until his death, so other Illinoisans with a
25        terminal diagnosis would not be forced to suffer at
26        the end of their lives and die in pain as he did but

 

 

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1        would instead have the option of medical aid-in-dying
2        care.
3        (4) Illinoisans throughout the State, across
4    demographics, including religion, political affiliation,
5    race, gender, disability, and age, also support the
6    inclusion of medical aid-in-dying care in the options
7    available for end-of-life care. Supporters and advocates
8    recognize that mentally capable adult individuals have a
9    fundamental right to determine their own medical treatment
10    options in accordance with their own values, beliefs, or
11    personal preferences, and having the option of medical aid
12    in dying is an expression of this fundamental right. This
13    includes advocates, like Lowell Sachnoff, who, alongside
14    his wife Fay Clayton, was a tireless advocate for the
15    expansion of end-of-life options for terminally ill adults
16    over the course of a decade, up to and including the day he
17    died.
18    (b) It is the intent of the General Assembly to uphold both
19the highest standard of medical care and the full range of
20options for each individual, particularly at the end of life.
 
21    Section 10. Definitions. As used in this Act:
22    "Adult" means an individual 18 years of age or older.
23    "Advanced practice registered nurse" means an advanced
24practice registered nurse licensed under the Nurse Practice
25Act who is certified as a psychiatric mental health

 

 

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1practitioner.
2    "Aid in dying" means an end-of-life care option that
3allows a qualified patient to obtain a prescription for
4medication pursuant to this Act.
5    "Attending physician" means the physician who has primary
6responsibility for the care of the patient and treatment of
7the patient's terminal disease.
8    "Clinical psychologist" means a psychologist licensed
9under the Clinical Psychologist Licensing Act.
10    "Clinical social worker" means a person licensed under the
11Clinical Social Work and Social Work Practice Act.
12    "Coercion or undue influence" means the willful attempt,
13whether by deception, intimidation, or any other means to:
14        (1) cause a patient to request, obtain, or
15    self-administer medication pursuant to this Act with
16    intent to cause the death of the patient; or
17        (2) prevent a qualified patient, in a manner that
18    conflicts with the Health Care Right of Conscience Act,
19    from obtaining or self-administering medication pursuant
20    to this Act.
21    "Consulting physician" means a physician who is qualified
22by specialty or experience to make a professional diagnosis
23and prognosis regarding the patient's disease.
24    "Department" means the Department of Public Health.
25    "Health care entity" means a hospital or hospital
26affiliate, nursing home, hospice or any other facility

 

 

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1licensed under any of the following Acts: the Ambulatory
2Surgical Treatment Center Act; the Home Health, Home Services,
3and Home Nursing Agency Licensing Act; the Hospice Program
4Licensing Act; the Hospital Licensing Act; the Nursing Home
5Care Act; or the University of Illinois Hospital Act. "Health
6care entity" does not include a physician.
7    "Health care professional" means a physician, pharmacist,
8or licensed mental health professional.
9    "Informed decision" means a decision by a patient with
10mental capacity and a terminal disease to request and obtain a
11prescription for medication pursuant to this Act, that the
12qualified patient may self-administer to bring about a
13peaceful death, after being fully informed by the attending
14physician and consulting physician of:
15        (1) the patient's diagnosis and prognosis;
16        (2) the potential risks and benefits associated with
17    taking the medication to be prescribed;
18        (3) the probable result of taking the medication to be
19    prescribed;
20        (4) the feasible end-of-life care and treatment
21    options for the patient's terminal disease, including, but
22    not limited to, comfort care, palliative care, hospice
23    care, and pain control, and the risks and benefits of
24    each;
25        (5) the patient's right to withdraw a request pursuant
26    this Act, or consent for any other treatment, at any time;

 

 

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1    and
2        (6) the patient's right to choose not to obtain the
3    drug or to choose to obtain the drug but not to ingest it.
4    "Licensed mental health care professional" means a
5psychiatrist, clinical psychologist, clinical social worker,
6or advanced practice registered nurse.
7    "Mental capacity" means that, in the opinion of the
8attending physician or the consulting physician or, if the
9opinion of a licensed mental health care professional is
10required under Section 45, the licensed mental health care
11professional, the patient requesting medication pursuant to
12this Act has the ability to make and communicate an informed
13decision.
14    "Oral request" means an affirmative statement that
15demonstrates a contemporaneous affirmatively stated desire by
16the patient seeking aid in dying.
17    "Pharmacist" means an individual licensed to engage in the
18practice of pharmacy under the Pharmacy Practice Act.
19    "Physician" means a person licensed to practice medicine
20in all of its branches under the Medical Practice Act of 1987.
21    "Psychiatrist" means a physician who has successfully
22completed a residency program in psychiatry accredited by
23either the Accreditation Council for Graduate Medical
24Education or the American Osteopathic Association.
25    "Qualified patient" means an adult Illinois resident with
26the mental capacity to make medical decisions who has

 

 

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1satisfied the requirements of this Act in order to obtain a
2prescription for medication to bring about a peaceful death.
3No person will be considered a "qualified patient" under this
4Act solely because of advanced age, disability, or a mental
5health condition, including depression.
6    "Self-administer" means an affirmative, conscious,
7voluntary action, performed by a qualified patient, to ingest
8medication prescribed pursuant to this Act to bring about the
9patient's peaceful death. "Self-administer" does not include
10administration by parenteral injection or infusion.
11    "Terminal disease" means an incurable and irreversible
12disease that will, within reasonable medical judgment, result
13in death within 6 months. The existence of a terminal disease,
14as determined after in-person examination by the patient's
15physician and concurrence by another physician, shall be
16documented in writing in the patient's medical record. A
17diagnosis of a major depressive disorder, as defined in the
18current edition of the Diagnostic and Statistical Manual of
19Mental Disorders, alone does not qualify as a terminal
20disease.
 
21    Section 15. Informed consent.
22    (a) Nothing in this Act may be construed to limit the
23amount of information provided to a patient to ensure the
24patient can make a fully informed health care decision.
25    (b) An attending physician must provide sufficient

 

 

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1information to a patient regarding all appropriate end-of-life
2care options, including comfort care, hospice care, palliative
3care, and pain control, as well as the foreseeable risks and
4benefits of each, so that the patient can make a voluntary and
5affirmative decision regarding the patient's end-of-life care.
6    (c) If a patient makes a request for the patient's medical
7records to be transmitted to an alternative physician, the
8patient's medical records shall be transmitted without undue
9delay.
 
10    Section 20. Standard of care. Nothing contained in this
11Act shall be interpreted to lower the applicable standard of
12care for the health care professionals participating under
13this Act.
 
14    Section 25. Qualification.
15    (a) A qualified patient with a terminal disease may
16request a prescription for medication under this Act in the
17following manner:
18        (1) The qualified patient may orally request a
19    prescription for medication under this Act from the
20    patient's attending physician.
21        (2) The oral request from the qualified patient shall
22    be documented by the attending physician.
23        (3) The qualified patient shall provide a written
24    request in accordance with this Act to the patient's

 

 

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1    attending physician after making the initial oral request.
2        (4) The qualified patient shall repeat the oral
3    request to the patient's attending physician no less than
4    5 days after making the initial oral request.
5    (b) The attending and consulting physicians of a qualified
6patient shall have met all the requirements of Sections 35 and
740.
8    (c) Notwithstanding subsection (a), if the individual's
9attending physician has medically determined that the
10individual will, within reasonable medical judgment, die
11within 5 days after making the initial oral request under this
12Section, the individual may satisfy the requirements of this
13Section by providing a written request and reiterating the
14oral request to the attending physician at any time after
15making the initial oral request.
16    (d) At the time the patient makes the second oral request,
17the attending physician shall offer the patient an opportunity
18to rescind the request.
19    (e) Oral and written requests for aid in dying may be made
20only by the patient and shall not be made by the patient's
21surrogate decision-maker, health care proxy, health care
22agent, attorney-in-fact for health care, guardian, nor via
23advance health care directive.
24    (f) If a requesting patient decides to transfer care to an
25alternative physician, the records custodian shall, upon
26written request, transmit, without undue delay, the patient's

 

 

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1medical records, including written documentation of the dates
2of the patient's requests concerning aid in dying.
3    (g) A transfer of care or medical records does not toll or
4restart any waiting period.
 
5    Section 30. Form of written request.
6    (a) A written request for medication under this Act shall
7be in substantially the form under subsection (e), signed and
8dated by the requesting patient, and witnessed in the presence
9of the patient by at least 2 witnesses who attest that to the
10best of their knowledge and belief the patient has mental
11capacity, is acting voluntarily, and is not being coerced or
12unduly influenced to sign the request.
13    (b) One of the witnesses required under this Section must
14be a person who is not:
15        (1) a relative of the patient by blood, marriage,
16    civil union, registered domestic partnership, or adoption;
17        (2) a person who, at the time the request is signed,
18    would be entitled to any portion of the estate of the
19    qualified patient upon death, under any will or by
20    operation of law; or
21        (3) an owner, operator, or employee of a health care
22    entity where the qualified patient is receiving medical
23    treatment or is a resident.
24    (c) The patient's attending physician at the time the
25request is signed shall not be a witness.

 

 

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1    (d) If a person uses an interpreter, the interpreter shall
2not be a witness.
3    (e) The written request for medication under this Act
4shall be substantially as follows:
 
5
"Request for Medication to End My Life in a Peaceful Manner

 
6    I, ............... (NAME OF PATIENT), am an adult of sound
7mind, and a resident of Illinois. I have been diagnosed with
8............... (NAME OF CONDITION) and given a terminal
9disease prognosis of 6 months or less to live by my attending
10physician.
11    I affirm that my terminal disease diagnosis was given or
12confirmed during at least one in-person visit to a health care
13professional.
14    I have been fully informed of the feasible alternatives
15and concurrent or additional treatment opportunities for my
16terminal disease, including, but not limited to, comfort care,
17palliative care, hospice care, or pain control, as well as the
18potential risks and benefits of each. I have been offered,
19have received, or have been offered and received resources or
20referrals to pursue these alternatives and concurrent or
21additional treatment opportunities for my terminal disease.
22    I have been fully informed of the nature of the medication
23to be prescribed, including the risks and benefits, and I
24understand that the likely outcome of self-administering the

 

 

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1medication is death.
2    I understand that I can rescind this request at any time,
3that I am under no obligation to fill the prescription once
4written, and that I have no duty to self-administer the
5medication if I obtain it.
6    I request that my attending physician furnish a
7prescription for medication that will end my life if I choose
8to self-administer it, and I authorize my attending physician
9to transmit the prescription to a pharmacist to dispense the
10medication at a time of my choosing.
11    I make this request voluntarily, free from coercion or
12undue influence.
13Dated: ................
14Signed..............................................
15
(patient)
16Dated: ................
17Signed...........................................
18
(witness #1)
19Dated: ................
20Signed..........................................
21
(witness #2)"

 
22(f) The interpreter attachment for a written request for
23medication under this Act shall be substantially as follows:
 
24
"Request for Medication to End My Life in a Peaceful Manner

 

 

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1
Interpreter Attachment

 
2    I, ............... (NAME OF INTERPRETER), am fluent in
3English and ............... (LANGUAGE OF PATIENT, INCLUDING
4SIGN LANGUAGE).
5    On ....... (DATE) at approximately ....... (TIME), I read
6the "Request for Medication to End My Life in a Peaceful
7Manner" form to ............... (NAME OF PATIENT) in
8............... (LANGUAGE OF PATIENT, INCLUDING SIGN
9LANGUAGE).
10    ............... (NAME OF PATIENT) affirmed to me that they
11understand the content of this form, that they desire to sign
12this form under their own power and volition, and that they
13requested to sign the form after consultations with an
14attending physician.
15    Under penalty of perjury, I declare that I am fluent in
16English and ............... (LANGUAGE OF PATIENT, INCLUDING
17SIGN LANGUAGE) and that the contents of this form, to the best
18of my knowledge, are true and correct. Executed at
19.................................. (NAME OF CITY, COUNTY, AND
20STATE) on ....... (DATE).
21Interpreter's signature: ....................................
22Interpreter's printed name: .................................
23Interpreter's address: ......................................".
 
24    Section 35. Attending physician responsibilities.

 

 

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1    (a) Following the request of a patient for aid in dying,
2the attending physician shall conduct an evaluation of the
3patient and:
4        (1) determine whether the patient has a terminal
5    disease or has been diagnosed as having a terminal
6    disease;
7        (2) determine whether a patient has mental capacity;
8        (3) confirm that the patient's request does not arise
9    from coercion or undue influence;
10        (4) inform the patient of:
11            (A) the diagnosis;
12            (B) the prognosis;
13            (C) the potential risks, benefits, and probable
14        result of self-administering the prescribed medication
15        to bring about a peaceful death;
16            (D) the potential benefits and risks of feasible
17        alternatives, including, but not limited to,
18        concurrent or additional treatment options for the
19        patient's terminal disease, comfort care, palliative
20        care, hospice care, and pain control; and
21            (E) the patient's right to rescind the request for
22        medication pursuant to this Act at any time;
23        (5) inform the patient that there is no obligation to
24    fill the prescription nor an obligation to self-administer
25    the medication, if it is obtained;
26        (6) provide the patient with a referral for comfort

 

 

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1    care, palliative care, hospice care, pain control, or
2    other end-of-life treatment options as requested by the
3    patient and as clinically indicated;
4        (7) refer the patient to a consulting physician for
5    medical confirmation that the patient requesting
6    medication pursuant to this Act:
7            (A) has a terminal disease with a prognosis of 6
8        months or less to live; and
9            (B) has mental capacity.
10        (8) include the consulting physician's written
11    determination in the patient's medical record;
12        (9) refer the patient to a licensed mental health
13    professional in accordance with Section 45 if the
14    attending physician observes signs that the individual may
15    not be capable of making an informed decision;
16        (10) include the licensed mental health professional's
17    written determination in the patient's medical record, if
18    such determination was requested;
19        (11) inform the patient of the benefits of notifying
20    the next of kin of the patient's decision to request
21    medication pursuant to this Act;
22        (12) fulfill the medical record documentation
23    requirements;
24        (13) ensure that all steps are carried out in
25    accordance with this Act before providing a prescription
26    to a qualified patient for medication pursuant to this Act

 

 

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1    including:
2            (A) confirming that the patient has made an
3        informed decision to obtain a prescription for
4        medication;
5            (B) offering the patient an opportunity to rescind
6        the request for medication; and
7            (C) providing information to the patient on:
8                (i) the recommended procedure for
9            self-administering the medication to be
10            prescribed;
11                (ii) the safekeeping and proper disposal of
12            unused medication in accordance with State and
13            federal law;
14                (iii) the importance of having another person
15            present when the patient self-administers the
16            medication to be prescribed; and
17                (iv) not taking the aid-in-dying medication in
18            a public place;
19        (14) deliver, in accordance with State and federal
20    law, the prescription personally, by mail, or through an
21    authorized electronic transmission to a licensed
22    pharmacist who will dispense the medication, including any
23    ancillary medications, to the qualified patient, or to a
24    person expressly designated by the qualified patient in
25    person or with a signature required on delivery, by mail
26    service, or by messenger service;

 

 

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1        (15) if authorized by the Drug Enforcement
2    Administration, dispense the prescribed medication,
3    including any ancillary medications, to the qualified
4    patient or a person designated by the qualified patient;
5    and
6        (16) include, in the qualified patient's medical
7    record, the patient's diagnosis and prognosis,
8    determination of mental capacity, the date of each oral
9    request, a copy of the written request, a notation that
10    the requirements under this Section have been completed,
11    and an identification of the medication and ancillary
12    medications prescribed to the qualified patient pursuant
13    to this Act.
14    (b) Notwithstanding any other provision of law, the
15attending physician may sign the patient's death certificate.
 
16    Section 40. Consulting physician responsibilities. A
17consulting physician shall:
18        (1) conduct an evaluation of the patient and review
19    the patient's relevant medical records, including the
20    evaluation pursuant to Section 45, if such evaluation was
21    necessary;
22        (2) confirm in writing to the attending physician that
23    the patient:
24            (A) has requested a prescription for aid-in-dying
25        medication;

 

 

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1            (B) has a documented terminal disease;
2            (C) has mental capacity or has provided
3        documentation that the consulting health care
4        professional has referred the individual for further
5        evaluation in accordance with Section 45; and
6            (D) is acting voluntarily, free from coercion or
7        undue influence.
 
8    Section 45. Referral for determination that the requesting
9patient has mental capacity.
10    (a) If either the attending physician or the consulting
11physician has doubts whether the individual has mental
12capacity and if either one is unable to confirm that the
13individual is capable of making an informed decision, the
14attending physician or consulting physician shall refer the
15patient to a licensed mental health professional for
16determination regarding mental capability.
17    (b) The licensed mental health professional shall
18additionally determine whether the patient is suffering from a
19psychiatric or psychological disorder causing impaired
20judgment.
21    (c) The licensed mental health professional who evaluates
22the patient under this Section shall submit to the requesting
23attending or consulting physician a written determination of
24whether the patient has mental capacity.
25    (d) If the licensed mental health professional determines

 

 

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1that the patient does not have mental capacity, or is
2suffering from a psychiatric or psychological disorder causing
3impaired judgment, the patient shall not be deemed a qualified
4patient and the attending physician shall not prescribe
5medication to the patient under this Act.
 
6    Section 50. Residency requirement.
7    (a) Only requests made by Illinois residents may be
8granted under this Act.
9    (b) A patient is able to establish residency through any
10one or more of the following means:
11        (1) possession of a driver's license or other
12    identification issued by the Secretary of State or State
13    of Illinois;
14        (2) registration to vote in Illinois;
15        (3) evidence that the person owns, rents, or leases
16    property in Illinois;
17        (4) the location of any dwelling occupied by the
18    person;
19        (5) the place where any motor vehicle owned by the
20    person is registered;
21        (6) the residence address, not a post office box,
22    shown on an income tax return filed for the year preceding
23    the year in which the person initially makes an oral
24    request under this Act;
25        (7) the residence address, not a post office box, at

 

 

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1    which the person's mail is received;
2        (8) the residence address, not a post office box,
3    shown on any unexpired resident hunting or fishing or
4    other licenses held by the person;
5        (9) the receipt of any public benefit conditioned upon
6    residency; or
7        (10) any other objective facts tending to indicate a
8    person's place of residence is in Illinois.
 
9    Section 55. Safe disposal of unused medications. A person
10who has custody or control of medication prescribed pursuant
11to this Act after the qualified patient's death shall dispose
12of the medication by delivering it to the nearest qualified
13facility that properly disposes of controlled substances or,
14if none is available, by lawful means in accordance with
15applicable State and federal guidelines.
 
16    Section 60. Health care professional protections; no duty
17to provide aid in dying.
18    (a) A health care professional shall not be under any
19duty, by law or contract, to participate in the provision of
20aid-in-dying care to a patient as set forth in this Act.
21    (b) A health care professional shall not be subject to
22civil or criminal liability for participating or refusing to
23participate in the provision of aid-in-dying care to a patient
24in good faith compliance with this Act.

 

 

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1    (c) Except as set forth in Section 65, a health care entity
2or licensing board shall not subject a health care
3professional to censure, discipline, suspension, loss of
4license, loss of privileges, loss of membership, or other
5penalty for participating or refusing to participate in
6accordance with this Act.
7    (d) A health care professional may choose not to engage in
8aid-in-dying care.
9    (e) Only willing health care professionals shall provide
10aid-in-dying care in accordance with this Act. If a health
11care professional is unable or unwilling to carry out a
12patient's request under this Act, and the patient transfers
13the patient's care to a new health care professional, the
14prior health care professional shall transmit, upon request, a
15copy of the patient's relevant medical records to the new
16health care professional without undue delay.
17    (f) A health care professional shall not engage in false,
18misleading, or deceptive practices relating to a willingness
19to qualify a patient or provide aid-in-dying care.
20Intentionally misleading a patient constitutes coercion or
21undue influence.
22    (g) The provisions of the Health Care Right of Conscience
23Act apply to this Act and are incorporated by reference.
 
24    Section 65. Health care entity protections and permissible
25prohibitions and duties.

 

 

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1    (a) A health care entity shall not be under any duty, by
2law or contract, to participate in the provision of
3aid-in-dying care to a patient as set forth in this Act.
4    (b) A health care entity shall not be subject to civil or
5criminal liability for participating or refusing to
6participate in the provision of aid-in-dying care to a patient
7in good faith compliance with this Act.
8    (c) A health care entity may prohibit health care
9professionals, staff, employees, or independent contractors,
10from practicing aid-in-dying care while performing duties for
11the entity. A prohibiting entity must provide advance notice
12in writing to health care professionals and staff at the time
13of hiring, contracting with, or privileging and on a yearly
14basis thereafter. Such policies prohibiting aid-in-dying care
15may include provisions for the health care entity to take
16disciplinary action, including, but not limited to,
17termination for those employees, independent contractors, and
18staff who violate the health care entity's policies,
19consistent with existing disciplinary policies.
20    (d) If a patient wishes to transfer care to another health
21care entity, the prohibiting entity shall coordinate a timely
22transfer of care, including transmitting, without undue delay,
23the patient's medical records.
24    (e) No health care entity shall prohibit a health care
25professional from:
26        (1) providing information to a patient regarding the

 

 

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1    patient's health status, including, but not limited to,
2    diagnosis, prognosis, recommended treatment and treatment
3    alternatives, and the risks and benefits of each;
4        (2) providing information regarding health care
5    services available pursuant to this Act, information about
6    relevant community resources, and how to access those
7    resources for obtaining care of the patient's choice;
8        (3) practicing aid-in-dying care outside the scope of
9    the health care professional's employment or contract with
10    the prohibiting entity and off the premises of the
11    prohibiting entity; provided, however, that in such event
12    the health care professional shall explicitly tell the
13    patient that such health care professional is providing
14    such services independently and not as a representative of
15    their associated health care entity; or
16        (4) being present, if outside the scope of the health
17    care professional's employment or contractual duties, when
18    a qualified patient self-administers medication prescribed
19    pursuant to this Act or at the time of death, if requested
20    by the qualified patient or their representative.
21    (f) A health care entity shall not engage in false,
22misleading, or deceptive practices relating to its policy
23around end-of-life care services, including whether it has a
24policy that prohibits affiliated health care professionals
25from practicing aid-in-dying care; or intentionally denying a
26patient access to medication pursuant to this Act by

 

 

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1intentionally failing to transfer a patient and the patient's
2medical records to another health care professional in a
3timely manner. Intentionally misleading a patient or deploying
4misinformation to obstruct access to services pursuant to this
5Act constitutes coercion or undue influence.
6    (g) The provisions of the Health Care Right of Conscience
7Act apply to this Act and are incorporated by reference.
8    (h) If any part of this Section is found to be in conflict
9with federal requirements which are a prescribed condition to
10receipt of federal funds, the conflicting part of this Section
11is inoperative solely to the extent of the conflict with
12respect to the entity directly affected, and such finding or
13determination shall not affect the operation of the remainder
14of the Section or this Act.
 
15    Section 70. Immunities for actions in good faith;
16prohibition against reprisals.
17    (a) Except as set forth in Section 65, a health care
18professional or health care entity shall not be subject to
19civil or criminal liability, licensing sanctions, or other
20professional disciplinary action for actions taken in good
21faith compliance with this Act.
22    (b) If a health care professional or health care entity is
23unable or unwilling to carry out an individual's request for
24aid in dying, the professional or entity shall, at a minimum:
25        (1) inform the individual of the professional's or

 

 

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1    entity's inability or unwillingness;
2        (2) refer the individual either to a health care
3    professional who is able and willing to evaluate and
4    qualify the individual or to another individual or entity
5    to assist the requesting individual in seeking aid in
6    dying, in accordance with the Health Care Right of
7    Conscience Act; and
8        (3) note, in the medical record, the individual's date
9    of request and health care professional's notice to the
10    individual of the health care professional's unwillingness
11    or inability to carry out the individual's request.
12    (c) Except as set forth in Section 65, a health care entity
13or licensing board shall not subject a health care
14professional to censure, discipline, suspension, loss of
15license, loss of privileges, loss of membership, or other
16penalty for engaging in good faith compliance with this Act.
17    (d) Except as set forth in Section 65, a health care
18professional, health care entity, or licensing board shall not
19subject a health care professional to discharge, demotion,
20censure, discipline, suspension, loss of license, loss of
21privileges, loss of membership, discrimination, or any other
22penalty for providing aid-in-dying care in accordance with the
23standard of care and in good faith under this Act when:
24        (1) engaged in the outside practice of medicine and
25    off of the objecting health care entity's premises; or
26        (2) providing scientific and accurate information

 

 

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1    about aid-in-dying care to a patient when discussing
2    end-of-life care options.
3    (e) A physician is not subject to civil or criminal
4liability or professional discipline if, at the request of the
5qualified patient, the physician is present outside the scope
6of the physician's employment contract and off the entity's
7premises, when the qualified patient self-administers
8medication pursuant to this Act, or at the time of death.
9    (f) A physician who is present at self-administration may,
10without civil or criminal liability, assist the qualified
11patient by preparing the medication prescribed pursuant to
12this Act.
13    (g) A request by a patient for aid in dying does not alone
14constitute grounds for neglect or elder abuse for any purpose
15of law, nor shall it be the sole basis for appointment of a
16guardian.
17    (h) This Section does not limit civil liability for
18intentional misconduct.
 
19    Section 75. Reporting requirements.
20    (a) Within 45 days after the effective date of this Act,
21the Department shall create and post to its website an
22Attending Physician Checklist Form and Attending Physician
23Follow-Up Form to facilitate collection of the information
24described in this Section. Failure to create or post the
25Attending Physician Checklist Form, the Attending Physician

 

 

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1Follow-Up Form, or both shall not suspend the effective date
2of this Act.
3    (b) Within 30 calendar days of providing a prescription
4for medication pursuant to this Act, the attending physician
5shall submit to the Department an Attending Physician
6Checklist Form with the following information:
7        (1) the qualifying patient's name and date of birth;
8        (2) the qualifying patient's terminal diagnosis and
9    prognosis;
10        (3) notice that the requirements under this Act were
11    completed; and
12        (4) notice that medication has been prescribed
13    pursuant to this Act.
14    (c) Within 60 calendar days of notification of a qualified
15patient's death from self-administration of medication
16prescribed pursuant to this Act, the attending physician shall
17submit to the Department, an Attending Physician Follow-Up
18Form with the following information:
19        (1) the qualified patient's name and date of birth;
20        (2) the date of the qualified patient's death; and
21        (3) a notation of whether the qualified patient was
22    enrolled in hospice services at the time of the qualified
23    patient's death.
24    (d) The information collected shall be confidential and
25shall be collected in a manner that protects the privacy of the
26patient, the patient's family, and any health care

 

 

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1professional involved with the patient under the provisions of
2this Act. The information shall be privileged and strictly
3confidential, and shall not be disclosed, discoverable, or
4compelled to be produced in any civil, criminal,
5administrative, or other proceeding.
6    (e) One year after the effective date of this Act, and each
7year thereafter, the Department shall create and post on its
8website a public statistical report of nonidentifying
9information. The report shall be limited to:
10        (1) the number of prescriptions for medication written
11    pursuant to this Act;
12        (2) the number of physicians who wrote prescriptions
13    for medication pursuant to this Act;
14        (3) the number of qualified patients who died
15    following self-administration of medication prescribed and
16    dispensed pursuant to this Act; and
17        (4) the number of people who died due to using an
18    aid-in-dying drug, with demographic percentages organized
19    by the following characteristics as aggregated and
20    de-identified data sets:
21            (A) age at death;
22            (B) education level;
23            (C) race;
24            (D) gender;
25            (E) type of insurance, including whether the
26        patient had insurance;

 

 

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1            (F) underlying illness; and
2            (G) enrollment in hospice.
3    (f) Except as otherwise required by law, the information
4collected by the Department is not a public record, is not
5available for public inspection, and is not available through
6the Freedom of Information Act.
7    (g) Willful failure or refusal to timely submit records
8required under this Act may result in disciplinary action.
 
9    Section 80. Effect on construction of wills, contracts,
10and statutes.
11    (a) No provision in a contract, will, or other agreement,
12whether written or oral, that would determine whether a
13patient may make or rescind a request pursuant to this Act is
14valid.
15    (b) No obligation owing under any contract that is in
16effect on the effective date of this Act shall be conditioned
17or affected by a patient's act of making or rescinding a
18request pursuant to this Act.
19    (c) It is unlawful for an insurer to deny or alter health
20care benefits otherwise available to a patient with a terminal
21disease based on the availability of aid-in-dying care or
22otherwise attempt to coerce a patient with a terminal disease
23to make a request for aid-in-dying medication.
24    (d) Nothing in this Act prevents an insurer from
25exercising any right to void a policy based on a material

 

 

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1misrepresentation, as provided under Section 154 of the
2Illinois Insurance Code, in an application for insurance.
 
3    Section 85. Insurance or annuity policies.
4    (a) The sale, procurement, or issuance of a life, health,
5or accident insurance policy, annuity policy, or the rate
6charged for a policy shall not be conditioned upon or affected
7by a patient's act of making or rescinding a request for
8medication pursuant to this Act.
9    (b) A qualified patient's act of self-administering
10medication pursuant to this Act does not invalidate any part
11of a life, health, or accident insurance, or annuity policy.
12    (c) An insurance plan, including medical assistance under
13Article V of the Illinois Public Aid Code, shall not deny or
14alter benefits to a patient with a terminal disease who is a
15covered beneficiary of a health insurance plan, based on the
16availability of aid-in-dying care, their request for
17medication pursuant to this Act, or the absence of a request
18for medication pursuant to this Act. Failure to meet this
19requirement shall constitute a violation of the Illinois
20Insurance Code.
21    (d) The Department of Insurance shall enforce the
22provisions of this Act with respect to any life, health, or
23accident insurance policy or annuity policy pursuant to the
24enforcement powers granted to it by law. A violation of this
25Act by any person or entity under the jurisdiction of the

 

 

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1Department of Insurance shall be deemed a violation of the
2relevant provisions of the Illinois Insurance Code under which
3the person or entity is authorized to transact business in
4this State.
5    (e) For the purposes of this Act, "life, health, or
6accident insurance policy or annuity policy" means any
7insurance under Class 1(a), 1(b), or 2(a) of the Illinois
8Insurance Code, a health care plan under the Health
9Maintenance Organization Act, a limited health care plan under
10the Limited Health Service Organization Act, a dental service
11plan under the Dental Service Plans Act, or a voluntary health
12services plan under the Voluntary Health Services Plan Act.
 
13    Section 90. Death certificate.
14    (a) Unless otherwise prohibited by law, the attending
15physician may sign the death certificate of a qualified
16patient who obtained and self-administered a prescription for
17medication pursuant to this Act.
18    (b) When a death has occurred in accordance with this Act,
19the death shall be attributed to the underlying terminal
20disease.
21        (1) Death following self-administering medication
22    under this Act does not alone constitute grounds for
23    postmortem inquiry.
24        (2) Death in accordance with this Act shall not be
25    designated a suicide or homicide.

 

 

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1    (c) A qualified patient's act of self-administering
2medication prescribed pursuant to this Act shall not be
3indicated on the death certificate.
 
4    Section 95. Liabilities and penalties.
5    (a) Nothing in this Act limits civil or criminal liability
6arising from:
7        (1) Intentionally or knowingly altering or forging a
8    patient's request for medication pursuant to this Act or
9    concealing or destroying a rescission of a request for
10    medication pursuant to this Act.
11        (2) Intentionally or knowingly coercing or exerting
12    undue influence on a patient with a terminal disease to
13    request medication pursuant to this Act or to request or
14    use or not use medication pursuant to this Act.
15        (3) Intentional misconduct by a health care
16    professional or health care entity.
17    (b) The penalties specified in this Act do not preclude
18criminal penalties applicable under other laws for conduct
19inconsistent with this Act.
20    (c) As used in this Section, "intentionally" and
21"knowingly" have the meanings provided in Sections 4-4 and 4-5
22of the Criminal Code of 2012.
 
23    Section 100. Construction.
24    (a) Nothing in this Act authorizes a physician or any

 

 

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1other person, including the qualified patient, to end the
2qualified patient's life by lethal injection, lethal infusion,
3mercy killing, homicide, murder, manslaughter, euthanasia, or
4any other criminal act.
5    (b) Actions taken in accordance with this Act do not, for
6any purposes, constitute suicide, assisted suicide,
7euthanasia, mercy killing, homicide, murder, manslaughter,
8elder abuse or neglect, or any other civil or criminal
9violation under the law.
 
10    Section 105. Rulemaking Authority. The Department of
11Public Health and the Department of Veterans Affairs may adopt
12rules for the implementation and administration of this Act.
 
13    Section 110. Severability. The provisions of this Act are
14severable under Section 1.31 of the Statute on Statutes.
 
15    Section 200. The Freedom of Information Act is amended by
16changing Section 7.5 as follows:
 
17    (5 ILCS 140/7.5)
18    Sec. 7.5. Statutory exemptions. To the extent provided for
19by the statutes referenced below, the following shall be
20exempt from inspection and copying:
21        (a) All information determined to be confidential
22    under Section 4002 of the Technology Advancement and

 

 

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1    Development Act.
2        (b) Library circulation and order records identifying
3    library users with specific materials under the Library
4    Records Confidentiality Act.
5        (c) Applications, related documents, and medical
6    records received by the Experimental Organ Transplantation
7    Procedures Board and any and all documents or other
8    records prepared by the Experimental Organ Transplantation
9    Procedures Board or its staff relating to applications it
10    has received.
11        (d) Information and records held by the Department of
12    Public Health and its authorized representatives relating
13    to known or suspected cases of sexually transmitted
14    infection or any information the disclosure of which is
15    restricted under the Illinois Sexually Transmitted
16    Infection Control Act.
17        (e) Information the disclosure of which is exempted
18    under Section 30 of the Radon Industry Licensing Act.
19        (f) Firm performance evaluations under Section 55 of
20    the Architectural, Engineering, and Land Surveying
21    Qualifications Based Selection Act.
22        (g) Information the disclosure of which is restricted
23    and exempted under Section 50 of the Illinois Prepaid
24    Tuition Act.
25        (h) Information the disclosure of which is exempted
26    under the State Officials and Employees Ethics Act, and

 

 

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1    records of any lawfully created State or local inspector
2    general's office that would be exempt if created or
3    obtained by an Executive Inspector General's office under
4    that Act.
5        (i) Information contained in a local emergency energy
6    plan submitted to a municipality in accordance with a
7    local emergency energy plan ordinance that is adopted
8    under Section 11-21.5-5 of the Illinois Municipal Code.
9        (j) Information and data concerning the distribution
10    of surcharge moneys collected and remitted by carriers
11    under the Emergency Telephone System Act.
12        (k) Law enforcement officer identification information
13    or driver identification information compiled by a law
14    enforcement agency or the Department of Transportation
15    under Section 11-212 of the Illinois Vehicle Code.
16        (l) Records and information provided to a residential
17    health care facility resident sexual assault and death
18    review team or the Executive Council under the Abuse
19    Prevention Review Team Act.
20        (m) Information provided to the predatory lending
21    database created pursuant to Article 3 of the Residential
22    Real Property Disclosure Act, except to the extent
23    authorized under that Article.
24        (n) Defense budgets and petitions for certification of
25    compensation and expenses for court appointed trial
26    counsel as provided under Sections 10 and 15 of the

 

 

SB1950 Enrolled- 36 -LRB104 10803 BDA 20884 b

1    Capital Crimes Litigation Act (repealed). This subsection
2    (n) shall apply until the conclusion of the trial of the
3    case, even if the prosecution chooses not to pursue the
4    death penalty prior to trial or sentencing.
5        (o) Information that is prohibited from being
6    disclosed under Section 4 of the Illinois Health and
7    Hazardous Substances Registry Act.
8        (p) Security portions of system safety program plans,
9    investigation reports, surveys, schedules, lists, data, or
10    information compiled, collected, or prepared by or for the
11    Department of Transportation under Sections 2705-300 and
12    2705-616 of the Department of Transportation Law of the
13    Civil Administrative Code of Illinois, the Regional
14    Transportation Authority under Section 2.11 of the
15    Regional Transportation Authority Act, or the St. Clair
16    County Transit District under the Bi-State Transit Safety
17    Act (repealed).
18        (q) Information prohibited from being disclosed by the
19    Personnel Record Review Act.
20        (r) Information prohibited from being disclosed by the
21    Illinois School Student Records Act.
22        (s) Information the disclosure of which is restricted
23    under Section 5-108 of the Public Utilities Act.
24        (t) (Blank).
25        (u) Records and information provided to an independent
26    team of experts under the Developmental Disability and

 

 

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1    Mental Health Safety Act (also known as Brian's Law).
2        (v) Names and information of people who have applied
3    for or received Firearm Owner's Identification Cards under
4    the Firearm Owners Identification Card Act or applied for
5    or received a concealed carry license under the Firearm
6    Concealed Carry Act, unless otherwise authorized by the
7    Firearm Concealed Carry Act; and databases under the
8    Firearm Concealed Carry Act, records of the Concealed
9    Carry Licensing Review Board under the Firearm Concealed
10    Carry Act, and law enforcement agency objections under the
11    Firearm Concealed Carry Act.
12        (v-5) Records of the Firearm Owner's Identification
13    Card Review Board that are exempted from disclosure under
14    Section 10 of the Firearm Owners Identification Card Act.
15        (w) Personally identifiable information which is
16    exempted from disclosure under subsection (g) of Section
17    19.1 of the Toll Highway Act.
18        (x) Information which is exempted from disclosure
19    under Section 5-1014.3 of the Counties Code or Section
20    8-11-21 of the Illinois Municipal Code.
21        (y) Confidential information under the Adult
22    Protective Services Act and its predecessor enabling
23    statute, the Elder Abuse and Neglect Act, including
24    information about the identity and administrative finding
25    against any caregiver of a verified and substantiated
26    decision of abuse, neglect, or financial exploitation of

 

 

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1    an eligible adult maintained in the Registry established
2    under Section 7.5 of the Adult Protective Services Act.
3        (z) Records and information provided to a fatality
4    review team or the Illinois Fatality Review Team Advisory
5    Council under Section 15 of the Adult Protective Services
6    Act.
7        (aa) Information which is exempted from disclosure
8    under Section 2.37 of the Wildlife Code.
9        (bb) Information which is or was prohibited from
10    disclosure by the Juvenile Court Act of 1987.
11        (cc) Recordings made under the Law Enforcement
12    Officer-Worn Body Camera Act, except to the extent
13    authorized under that Act.
14        (dd) Information that is prohibited from being
15    disclosed under Section 45 of the Condominium and Common
16    Interest Community Ombudsperson Act.
17        (ee) Information that is exempted from disclosure
18    under Section 30.1 of the Pharmacy Practice Act.
19        (ff) Information that is exempted from disclosure
20    under the Revised Uniform Unclaimed Property Act.
21        (gg) Information that is prohibited from being
22    disclosed under Section 7-603.5 of the Illinois Vehicle
23    Code.
24        (hh) Records that are exempt from disclosure under
25    Section 1A-16.7 of the Election Code.
26        (ii) Information which is exempted from disclosure

 

 

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1    under Section 2505-800 of the Department of Revenue Law of
2    the Civil Administrative Code of Illinois.
3        (jj) Information and reports that are required to be
4    submitted to the Department of Labor by registering day
5    and temporary labor service agencies but are exempt from
6    disclosure under subsection (a-1) of Section 45 of the Day
7    and Temporary Labor Services Act.
8        (kk) Information prohibited from disclosure under the
9    Seizure and Forfeiture Reporting Act.
10        (ll) Information the disclosure of which is restricted
11    and exempted under Section 5-30.8 of the Illinois Public
12    Aid Code.
13        (mm) Records that are exempt from disclosure under
14    Section 4.2 of the Crime Victims Compensation Act.
15        (nn) Information that is exempt from disclosure under
16    Section 70 of the Higher Education Student Assistance Act.
17        (oo) Communications, notes, records, and reports
18    arising out of a peer support counseling session
19    prohibited from disclosure under the First Responders
20    Suicide Prevention Act.
21        (pp) Names and all identifying information relating to
22    an employee of an emergency services provider or law
23    enforcement agency under the First Responders Suicide
24    Prevention Act.
25        (qq) Information and records held by the Department of
26    Public Health and its authorized representatives collected

 

 

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1    under the Reproductive Health Act.
2        (rr) Information that is exempt from disclosure under
3    the Cannabis Regulation and Tax Act.
4        (ss) Data reported by an employer to the Department of
5    Human Rights pursuant to Section 2-108 of the Illinois
6    Human Rights Act.
7        (tt) Recordings made under the Children's Advocacy
8    Center Act, except to the extent authorized under that
9    Act.
10        (uu) Information that is exempt from disclosure under
11    Section 50 of the Sexual Assault Evidence Submission Act.
12        (vv) Information that is exempt from disclosure under
13    subsections (f) and (j) of Section 5-36 of the Illinois
14    Public Aid Code.
15        (ww) Information that is exempt from disclosure under
16    Section 16.8 of the State Treasurer Act.
17        (xx) Information that is exempt from disclosure or
18    information that shall not be made public under the
19    Illinois Insurance Code.
20        (yy) Information prohibited from being disclosed under
21    the Illinois Educational Labor Relations Act.
22        (zz) Information prohibited from being disclosed under
23    the Illinois Public Labor Relations Act.
24        (aaa) Information prohibited from being disclosed
25    under Section 1-167 of the Illinois Pension Code.
26        (bbb) Information that is prohibited from disclosure

 

 

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1    by the Illinois Police Training Act and the Illinois State
2    Police Act.
3        (ccc) Records exempt from disclosure under Section
4    2605-304 of the Illinois State Police Law of the Civil
5    Administrative Code of Illinois.
6        (ddd) Information prohibited from being disclosed
7    under Section 35 of the Address Confidentiality for
8    Victims of Domestic Violence, Sexual Assault, Human
9    Trafficking, or Stalking Act.
10        (eee) Information prohibited from being disclosed
11    under subsection (b) of Section 75 of the Domestic
12    Violence Fatality Review Act.
13        (fff) Images from cameras under the Expressway Camera
14    Act. This subsection (fff) is inoperative on and after
15    July 1, 2025.
16        (ggg) Information prohibited from disclosure under
17    paragraph (3) of subsection (a) of Section 14 of the Nurse
18    Agency Licensing Act.
19        (hhh) Information submitted to the Illinois State
20    Police in an affidavit or application for an assault
21    weapon endorsement, assault weapon attachment endorsement,
22    .50 caliber rifle endorsement, or .50 caliber cartridge
23    endorsement under the Firearm Owners Identification Card
24    Act.
25        (iii) Data exempt from disclosure under Section 50 of
26    the School Safety Drill Act.

 

 

SB1950 Enrolled- 42 -LRB104 10803 BDA 20884 b

1        (jjj) Information exempt from disclosure under Section
2    30 of the Insurance Data Security Law.
3        (kkk) Confidential business information prohibited
4    from disclosure under Section 45 of the Paint Stewardship
5    Act.
6        (lll) Data exempt from disclosure under Section
7    2-3.196 of the School Code.
8        (mmm) Information prohibited from being disclosed
9    under subsection (e) of Section 1-129 of the Illinois
10    Power Agency Act.
11        (nnn) Materials received by the Department of Commerce
12    and Economic Opportunity that are confidential under the
13    Music and Musicians Tax Credit and Jobs Act.
14        (ooo) Data or information provided pursuant to Section
15    20 of the Statewide Recycling Needs and Assessment Act.
16        (ppp) Information that is exempt from disclosure under
17    Section 28-11 of the Lawful Health Care Activity Act.
18        (qqq) Information that is exempt from disclosure under
19    Section 7-101 of the Illinois Human Rights Act.
20        (rrr) Information prohibited from being disclosed
21    under Section 4-2 of the Uniform Money Transmission
22    Modernization Act.
23        (sss) Information exempt from disclosure under Section
24    40 of the Student-Athlete Endorsement Rights Act.
25        (ttt) Audio recordings made under Section 30 of the
26    Illinois State Police Act, except to the extent authorized

 

 

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1    under that Section.
2        (uuu) Information exempt from disclosure under Section
3    70 of the End-of-Life Options for Terminally Ill Patients
4    Act.
5(Source: P.A. 102-36, eff. 6-25-21; 102-237, eff. 1-1-22;
6102-292, eff. 1-1-22; 102-520, eff. 8-20-21; 102-559, eff.
78-20-21; 102-813, eff. 5-13-22; 102-946, eff. 7-1-22;
8102-1042, eff. 6-3-22; 102-1116, eff. 1-10-23; 103-8, eff.
96-7-23; 103-34, eff. 6-9-23; 103-142, eff. 1-1-24; 103-372,
10eff. 1-1-24; 103-472, eff. 8-1-24; 103-508, eff. 8-4-23;
11103-580, eff. 12-8-23; 103-592, eff. 6-7-24; 103-605, eff.
127-1-24; 103-636, eff. 7-1-24; 103-724, eff. 1-1-25; 103-786,
13eff. 8-7-24; 103-859, eff. 8-9-24; 103-991, eff. 8-9-24;
14103-1049, eff. 8-9-24; 103-1081, eff. 3-21-25.)
 
15    Section 999. Effective date. This Act takes effect 9
16months after becoming law.