| ||||||||||||||||||||
 
  | ||||||||||||||||||||
 | ||||||||||||||||||||
  | ||||||||||||||||||||
 | ||||||||||||||||||||
| 1 |  AN ACT concerning regulation.
 | |||||||||||||||||||
| 2 |  Be it enacted by the People of the State of Illinois,
 | |||||||||||||||||||
| 3 | represented in the General Assembly:
 | |||||||||||||||||||
| 4 |  Section 1. Short title. This Act may be cited as the  | |||||||||||||||||||
| 5 | Caregiver Advise, Record, and Enable Act.
 | |||||||||||||||||||
| 6 |  Section 5. Definitions. As used in this Act, the following  | |||||||||||||||||||
| 7 | terms have the meaning given in this Section.
 | |||||||||||||||||||
| 8 |  "After-care" means any assistance provided by a caregiver  | |||||||||||||||||||
| 9 | to a patient after the patient's discharge from a hospital.  | |||||||||||||||||||
| 10 | After-care may include, but is not limited to, assisting with  | |||||||||||||||||||
| 11 | basic activities of daily living (ADLs), assisting with  | |||||||||||||||||||
| 12 | instrumental activities of daily living (IADLs), or carrying  | |||||||||||||||||||
| 13 | out medical or nursing tasks, such as managing wound care,  | |||||||||||||||||||
| 14 | assisting in administering medications, and operating medical  | |||||||||||||||||||
| 15 | equipment. | |||||||||||||||||||
| 16 |  "Caregiver" means any individual who provides after-care  | |||||||||||||||||||
| 17 | to a patient living in his or her residence and is duly  | |||||||||||||||||||
| 18 | designated as a caregiver by a patient. A designated caregiver  | |||||||||||||||||||
| 19 | may include, but is not limited to, a relative, partner,  | |||||||||||||||||||
| 20 | friend, or neighbor who has a significant relationship with the  | |||||||||||||||||||
| 21 | patient.
 | |||||||||||||||||||
| 22 |  "Discharge" means a patient's exit or release from a  | |||||||||||||||||||
| 23 | hospital to the patient's residence following any medical care,  | |||||||||||||||||||
 
  | |||||||
  | |||||||
| 1 | treatment, or observation. | ||||||
| 2 |  "Entry into a hospital" means a patient's entrance into a  | ||||||
| 3 | hospital for the purposes of medical care, treatment, or  | ||||||
| 4 | observation. For purposes of this Act, "entry into a hospital"  | ||||||
| 5 | does not require that a patient be formally admitted to a  | ||||||
| 6 | hospital. | ||||||
| 7 |  "Hospital" means a facility licensed under the Hospital  | ||||||
| 8 | Licensing Act. | ||||||
| 9 |  "Residence" means a dwelling that the patient considers to  | ||||||
| 10 | be his or her home. A "residence" does not include any  | ||||||
| 11 | rehabilitation facility, hospital, nursing home, assisted  | ||||||
| 12 | living establishment, or group home licensed by the Department  | ||||||
| 13 | of Public Health.
 | ||||||
| 14 |  Section 10. Opportunity to designate caregiver.  | ||||||
| 15 |  (a) Before any patient is discharged or transferred to  | ||||||
| 16 | another facility, but no later than 24 hours after a patient's  | ||||||
| 17 | entry into a hospital, the hospital shall provide the patient  | ||||||
| 18 | or the patient's legal guardian with at least one opportunity  | ||||||
| 19 | to designate one or more caregivers under this Act. | ||||||
| 20 |   (1) If a patient is unconscious or otherwise  | ||||||
| 21 |  incapacitated upon his or her entry into a hospital, the  | ||||||
| 22 |  hospital shall provide the patient or the patient's legal  | ||||||
| 23 |  guardian with an opportunity to designate a caregiver  | ||||||
| 24 |  within 24 hours following the patient's recovery of his or  | ||||||
| 25 |  her consciousness or capacity.
 | ||||||
 
  | |||||||
  | |||||||
| 1 |   (2) If a patient or the patient's legal guardian  | ||||||
| 2 |  declines to designate a caregiver under this Act, the  | ||||||
| 3 |  hospital shall promptly document in the patient's medical  | ||||||
| 4 |  record that the patient or the patient's legal guardian  | ||||||
| 5 |  declined to designate a caregiver. | ||||||
| 6 |   (3) If a patient or the patient's legal guardian  | ||||||
| 7 |  designates an individual as a caregiver under this Act: | ||||||
| 8 |    (A) the hospital shall promptly request the  | ||||||
| 9 |  written consent of the patient or the patient's legal  | ||||||
| 10 |  guardian to release medical information to the  | ||||||
| 11 |  patient's designated caregiver following the  | ||||||
| 12 |  hospital's established procedures for releasing  | ||||||
| 13 |  personal health information and in compliance with all  | ||||||
| 14 |  State and federal laws; and | ||||||
| 15 |    (B) the hospital shall record the patient's  | ||||||
| 16 |  designation of caregiver, the relationship of the  | ||||||
| 17 |  designated caregiver to the patient, and the name,  | ||||||
| 18 |  telephone number, and address of the patient's  | ||||||
| 19 |  designated caregiver in the patient's medical record. | ||||||
| 20 |   (4) If a patient or the patient's legal guardian  | ||||||
| 21 |  declines to consent to the release of medical information  | ||||||
| 22 |  to the patient's designated caregiver, then the hospital is  | ||||||
| 23 |  not required to provide notice to the caregiver under  | ||||||
| 24 |  Section 15 of this Act or provide information contained in  | ||||||
| 25 |  the patient's discharge plan under Section 20 of this Act.
 | ||||||
| 26 |   (5) A patient may elect to change his or her designated  | ||||||
 
  | |||||||
  | |||||||
| 1 |  caregiver at any time, and the hospital must record this  | ||||||
| 2 |  change in the patient's medical record within 24 hours of  | ||||||
| 3 |  the change.
 | ||||||
| 4 |  (b) A designation of a caregiver by the patient or the  | ||||||
| 5 | patient's legal guardian under this Section does not obligate  | ||||||
| 6 | any individual to provide any after-care for the patient. | ||||||
| 7 |  (c) This Section shall not be construed to require a  | ||||||
| 8 | patient or a patient's legal guardian to designate any  | ||||||
| 9 | individual as a caregiver under this Act.
 | ||||||
| 10 |  Section 15. Notice to designated caregiver. A hospital  | ||||||
| 11 | shall notify a patient's designated caregiver of the patient's  | ||||||
| 12 | discharge or transfer to another hospital or facility licensed  | ||||||
| 13 | by the Department of Public Health as soon as possible, but no  | ||||||
| 14 | later than 4 hours prior to the patient's actual discharge or  | ||||||
| 15 | transfer to that facility.
 | ||||||
| 16 |  Section 20. Instruction to designated caregiver.  | ||||||
| 17 |  (a) As soon as possible but no later than 24 hours prior to  | ||||||
| 18 | a patient's discharge from a hospital, the hospital shall  | ||||||
| 19 | consult with the designated caregiver regarding the  | ||||||
| 20 | caregiver's capabilities and limitations and shall issue a  | ||||||
| 21 | discharge plan that describes the patient's after-care needs at  | ||||||
| 22 | his or her residence. | ||||||
| 23 |  At minimum, a discharge plan shall include: | ||||||
| 24 |   (1) the name and contact information of the caregiver  | ||||||
 
  | |||||||
  | |||||||
| 1 |  designated under this Act;
 | ||||||
| 2 |   (2) a description of all after-care necessary to  | ||||||
| 3 |  maintain the patient's ability to reside at home, taking  | ||||||
| 4 |  into account the capabilities and limitations of the  | ||||||
| 5 |  caregiver; and
 | ||||||
| 6 |   (3) contact information for any health care providers,  | ||||||
| 7 |  community resources, and long-term services and supports  | ||||||
| 8 |  necessary to successfully carry out the patient's  | ||||||
| 9 |  discharge plan.
 | ||||||
| 10 |  (b) The hospital that issues the discharge plan must  | ||||||
| 11 | provide caregivers with instruction in all after-care  | ||||||
| 12 | described in the discharge plan. | ||||||
| 13 |   (1) At minimum, the instruction shall include:
 | ||||||
| 14 |    (A) a live demonstration of the after-care tasks  | ||||||
| 15 |  performed by a hospital employee authorized to perform  | ||||||
| 16 |  each after-care task, provided in a culturally  | ||||||
| 17 |  competent manner and in accordance with the hospital's  | ||||||
| 18 |  requirements to provide language access services under  | ||||||
| 19 |  State and federal law;
 | ||||||
| 20 |    (B) an opportunity for the caregiver to ask  | ||||||
| 21 |  questions about the after-care; and
 | ||||||
| 22 |    (C) answers to the caregiver's questions provided  | ||||||
| 23 |  in a culturally competent manner and in accordance with  | ||||||
| 24 |  the hospital's requirements to provide language access  | ||||||
| 25 |  services under State and federal law. | ||||||
| 26 |   (2) Any instruction provided under this Act shall be  | ||||||
 
  | |||||||
  | |||||||
| 1 |  documented in the patient's medical record, including, but  | ||||||
| 2 |  not limited to, documentation of the date, time, and  | ||||||
| 3 |  contents of the instruction.
 | ||||||
| 4 |  (c) The Department of Public Health is authorized to adopt  | ||||||
| 5 | rules to implement the provisions of this Act, including, but  | ||||||
| 6 | not limited to, rules to further define the content and scope  | ||||||
| 7 | of any instruction provided to caregivers under this Act.
 | ||||||
| 8 |  Section 25. Non-interference with powers of existing  | ||||||
| 9 | health care directives.
 Nothing in this Act shall be construed  | ||||||
| 10 | to interfere with the rights of an agent operating under a  | ||||||
| 11 | valid health care directive that was in existence prior to a  | ||||||
| 12 | patient's entry into a hospital.
 | ||||||
| 13 |  Section 99. Effective date. This Act takes effect upon  | ||||||
| 14 | becoming law. 
 | ||||||